Céline Dion recently opened up about her battle with stiff person syndrome, a rare neurological condition that has severely impacted her ability to sing. In her first broadcast interview since revealing her diagnosis in 2022, Dion discussed the challenges she faces while trying to perform with the condition. She described the feeling as though someone is strangling her and pushing her larynx/pharynx, making it difficult to control her voice. Dion first noticed symptoms of the disorder while on tour in 2008, experiencing muscle spasms and stiffness in her hands and feet. The intense muscle spasms associated with stiff person syndrome have even caused Dion to break ribs, leading to the cancellation of her Las Vegas residency and Courage World Tour.
Despite receiving therapy five days a week to manage her symptoms, Dion is unsure if she will ever be able to perform again. She admitted in a recent interview with Vogue France that she has been struggling with the decision of whether or not to return to the stage. Dion explained that she has been going back and forth on the idea for four years, unsure if she is ready physically and mentally to perform. The uncertainty surrounding her ability to sing again has left her unable to make any definitive plans for the future.
In the upcoming primetime special interview with Hoda Kotb, Dion delves deeper into her experience living with stiff person syndrome. She discusses the areas of her body that are affected by the condition, including her throat, hands, feet, and abdominals. Dion describes the sensation of her feet and hands locking in positions that are uncomfortable, and the cramping that accompanies the muscle spasms. She emphasizes the severity of the condition, noting that it can cause serious injuries such as broken ribs. Despite the physical challenges she faces, Dion remains determined to continue her therapy and manage her symptoms as best she can.
In the interview with Hoda Kotb, Dion also reflects on the impact that stiff person syndrome has had on her career and personal life. She reveals that the symptoms began affecting her voice and physical abilities while she was on tour, forcing her to confront the reality of her condition. Dion expresses her love for cooking and the frustration of not being able to use her hands properly due to the stiffness and muscle spasms. She acknowledges the difficulties she has faced in grappling with the limitations imposed by this rare neurological disorder, but remains hopeful for the future.
As she continues to navigate life with stiff person syndrome, Dion opens up about her experiences in the upcoming documentary “I Am: Celine Dion.” The film, set to be released on Amazon Prime Video, offers audiences a glimpse into the singer’s journey with the condition and the challenges she has faced along the way. Through sharing her story, Dion hopes to raise awareness about the realities of living with a rare neurological disorder and inspire others to persevere in the face of adversity. Her candor and resilience serve as a beacon of strength for those who may be struggling with similar health challenges, showing that with perseverance and determination, it is possible to overcome even the most difficult obstacles.
